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As number of autistic kids rises, schools and programs are being created to aid those with mild form



Emma Brown:

The middle school years, when nothing seems more important or more impossible than fitting in, are rough for nearly everyone. But they are particularly brutal for preteens such as Will Gilbertsen, whose mild autism makes him stand out.
Less than two months into sixth grade at Arlington County’s Kenmore Middle School this fall, the freckle-faced 11-year-old with a passion for skateboarding had gained a reputation for racewalking through the halls between classes. “That’s so I can’t hear the teasing,” he told his mother.
As the number of children with autism has ballooned nationwide, so has the population of children who, like Will, are capable of grade-level academics but bewildered by the social code that governs every interaction from the classroom to the cafeteria. Not so profoundly disabled that they belong in a self-contained classroom but lacking the social and emotional skills they need to negotiate school on their own, they often spend the bulk of their day in mainstream classes supported with a suite of special education services including life-skills groups and one-on-one aides.




$11,654,078 Additional Madison School District Spending Via the Federal Taxes & US Treasury Borrowing (“Stimulus”)



Madison School District Superintendent Dan Nerad [838K PDF]:

As part of Federal Stimulus funding iliat will be made available the district will receive American Recovery and Reinvestment Act (ARRA) funds to be used over a two year period.
These funds are in IDEA, IDEA EC and Title 1.
Program Costs/FundingiConsultation Service Employment Contract
The district has prepared a two year funding proposal along with a budget analysis for 2009-10 and 2010-11 for each of the sources for your review. The proposal amounts are as follows:
IDEA – $6,199,552
IDEA EC – $293,082
Title I – $5,161,444
Salary Savings
The funding proposals would increase FTE’s and include funding sources during the two year period of the ARRA funds

The proposal includes quite a bit of professional development, such as $400,000 for dual language immersion, $1.48M for 4K staff and $456,000 for 4K furniture and $100,000 for talented & gifted assessment.
Plan B, without 4K spending, includes $1,150,000 for professional development in the following areas: Topics include universal design, differentiation, mental health,
inclusive practices, autism, and quality IEPs.




iPhone applications can help the autistic



Greg Toppo:

Leslie Clark and her husband have been trying to communicate with their autistic 7-year-old son, JW, for years, but until last month, the closest they got was rudimentary sign language.
He’s “a little bit of a mini-genius,” Clark says, but like many autistic children, JW doesn’t speak at all.
Desperate to communicate with him, she considered buying a specialized device like the ones at his elementary school in Lincoln, Neb. But the text-to-speech machines are huge, heavy and expensive; a few go for $8,000 to $10,000.
Then a teacher told her about a new application that a researcher had developed for, of all things, the iPhone and iPod Touch. Clark drove to the local Best Buy and picked up a Touch, then downloaded the “app” from iTunes.
Total cost: about $500.




Children’s Use Of Psychiatric Drugs Begins To Decelerate



David Armstrong:

The growth in antipsychotic-drug prescriptions for children is slowing as state Medicaid agencies heighten their scrutiny of usage and doctors grow more wary of the powerful medications.
The softening in sales for children is the first sign that litigation, reaction to improper marketing tactics, and concern about side effects may be affecting what had been a fast-growing children’s drug segment.
The six so-called atypical antipsychotics that dominate the market have limited approval from the FDA to treat patients under 18 years of age. Only one is cleared for children under age 10 — risperidone, branded by Johnson & Johnson as Risperdal — to treat irritability associated with autism.




Why I Give My 9-year-old Pot



Marie Myung-Ok Lee:

Question: why are we giving our nine-year-old a marijuana cookie?
Answer: because he can’t figure out how to use a bong. My son J has autism. He’s also had two serious surgeries for a spinal cord tumor and has an inflammatory bowel condition, all of which may be causing him pain, if he could tell us. He can say words, but many of them–“duck in the water, duck in the water”–don’t convey what he means. For a time, anti-inflammatory medication seemed to control his pain. But in the last year, it stopped working. He began to bite and to smack the glasses off my face. If you were in that much pain, you’d probably want to hit someone, too.
Question: why are we giving our nine-year-old a marijuana cookie?
Answer: because he can’t figure out how to use a bong. My son J has autism. He’s also had two serious surgeries for a spinal cord tumor and has an inflammatory bowel condition, all of which may be causing him pain, if he could tell us. He can say words, but many of them–“duck in the water, duck in the water”–don’t convey what he means. For a time, anti-inflammatory medication seemed to control his pain. But in the last year, it stopped working. He began to bite and to smack the glasses off my face. If you were in that much pain, you’d probably want to hit someone, too.




Older Fathers Linked to Lower I.Q. Scores



Roni Caryn Rabin:

The children of older fathers scored lower than the offspring of younger fathers on I.Q. tests and a range of other cognitive measures at 8 months old, 4 years old and 7 years old, according to a study released Monday that added to a growing body of evidence suggesting risks to postponing fatherhood.
The study is the first to show that the children of older fathers do not perform as well on cognitive tests at young ages. Although the differences in scores were slight and usually off by just a few points on average, the study’s authors called the findings “unexpectedly startling.”
“The older the dads were, the slightly worse the children were doing,” said Dr. John J. McGrath, the paper’s senior author and a professor of psychiatry at the Queensland Brain Institute in Brisbane, Australia. “The findings fit in a straight line, suggesting there may be some steady beat of mutations happening in the dad’s sperm.”
Earlier studies have found a higher incidence of schizophrenia and autism among the offspring of men who were in their mid-to-late 40s or older when they had children. A study published in 2005 reported that 16-year-olds and 17-year-olds with older fathers scored lower on nonverbal I.Q. tests, as did the offspring of teenage fathers.




Reaching an Autistic Teenager



Melissa Fay Greene:

On a typical Monday morning at an atypical high school, teenage boys yanked open the glass doors to the First Baptist Church of Decatur, Ga. Half-awake, iPod wires curling from their ears, their backpacks unbuckled and their jeans baggy, the guys headed for the elevator. Arriving at Morning Meeting in the third-floor conference room, Stephen, his face hidden under long black bangs, dropped into a chair, sprawled across the table and went back to sleep. The Community School, or T.C.S., is a small private school for teenage boys with autism or related disorders. Sleep disturbances are common in this student body of 10, so a boy’s staggering need for sleep is respected. Nick Boswell, a tall fellow with thick sideburns, arrived and began his usual pacing along the windows that overlook the church parking lot and baseball diamond. Edwick, with spiky brown hair and a few black whiskers, tumbled backward with a splat into a beanbag chair on the floor.
“O.K., guys, let’s talk about your spring schedules,” said Dave Nelson, the 45-year-old founding director. He wore a green polo shirt, cargo shorts and sneakers and had a buzz haircut and an open, suntanned face. After his son Graham, 19, was given a diagnosis of autism spectrum disorder (A.S.D.) as a young child, Nelson left the business world and went into teaching and clinical and counseling work. On that Monday, he was instantly interrupted.
“I had a very bad night!” Edwick yelled from the floor. “Nightmares all night!”




Bringing Special-Needs Schools Closer to Home



Winnie Hu:

Tom Holohan, a 16-year-old with autistic symptoms, grew up paralyzed by fear and anxiety about leaving his family’s home. But for the last two years, Tom has had to commute to a Connecticut boarding school that specializes in treating his disability, returning on weekends to his home in Farmingdale, N.Y.
“There’s always this thing inside you that you want to be home,” said Tom, who attended five day schools here on Long Island and tried home schooling before his local school district sent him to the Connecticut school, Devereux Glenholme. “I mean, I got used to living there, but every day I think about what’s going on at home. It’s really difficult.”
Next year, Tom is hoping to attend Westbrook Preparatory School, a $2.5 million institution that will be New York State’s first residential school for students with high-functioning autism and that was founded after intense lobbying by parents, including Tom’s mother, Maureen Holohan, 48, who is on the school’s governing board. The new school, to serve 24 middle and high school students with average or above-average intelligence but in need of significant emotional and social support, is part of a statewide push to bring special education students back from out-of-state private schools by creating publicly financed alternatives closer to home.




Bringing Special-Needs Schools Closer to Home



Winnie Hu:

Tom Holohan, a 16-year-old with autistic symptoms, grew up paralyzed by fear and anxiety about leaving his family’s home. But for the last two years, Tom has had to commute to a Connecticut boarding school that specializes in treating his disability, returning on weekends to his home in Farmingdale, N.Y., about nine miles from here.
“There’s always this thing inside you that you want to be home,” said Tom, who attended five day schools on Long Island and tried home schooling before his local school district sent him to the Connecticut school, Devereux Glenholme. “I mean, I got used to living there, but every day I think about what’s going on at home. It’s really difficult.”
Next year, Tom is hoping to attend Westbrook Preparatory School, a $2.5 million institution that will be New York State’s first residential school for students with high-functioning autism and that was founded after intense lobbying by parents, including Tom’s mother, Maureen Holohan, 48, who is on the school’s governing board. The new school, serving 24 middle and high school students with average or above-average intelligence but in need of significant emotional and social support, is part of a statewide push to bring special education students back from out-of-state private schools by creating publicly financed alternatives closer to home.




You Need to Take My Son to Jail



Ann Bauer:

MY husband and I were sitting down to dinner when the police called. It was a female dispatcher whose voice I recognized from previous incidents involving my 20-year-old son, Andrew, who has autism.
In recent years, this police department has picked him up for shoplifting, taken reports from restaurants where he had dined and dashed, and once even brought him back from the airport after he tried to stow away on a plane.
Roughly half of the force has lectured me about keeping a closer eye on him, placing him in a secure facility, and finding a better psychiatrist, while the other half has been sweet and apologetic, concerned about how I’m bearing up.
On this occasion the dispatcher explained that my car, which I had earlier reported stolen, had been found on the side of the highway some 70 miles away in St. Cloud, Minn. — scratched, filthy and out of gas but otherwise undamaged. I would need to retrieve it from the impound lot. My son, unhurt, was waiting at the station. When would I be able to pick him up?
I swallowed a sip of Chianti and recited the line I had been rehearsing all afternoon: “I want to press charges.”
“I told you, the car is fine. Your son is fine. All you have to do is come pick them both up.”
“I want to press charges,” I said again, resolved to see this through.
“Against your son?” she asked, incredulous.




Jump in US measles cases linked to vaccine fears



Mike Stobbe:

Measles cases in the U.S. are at the highest level in more than a decade, with nearly half of those involving children whose parents rejected vaccination, health officials reported Thursday.
Worried doctors are troubled by the trend fueled by unfounded fears that vaccines may cause autism. The number of cases is still small, just 131, but that’s only for the first seven months of the year. There were only 42 cases for all of last year.
“We’re seeing a lot more spread. That is concerning to us,” said Dr. Jane Seward, of the Centers for Disease Control and Prevention.




Gaithersburg School Tailors Teaching To Help Students Cope With Asperger



Daniel de Vise:

The first day of kindergarten found Alex Barth in the principal’s office. The teacher had asked students to draw self-portraits. Alex had wanted to draw his in red crayon. There was no red crayon. Alex had melted down.
Alex was a capable child with superior intelligence — and no end of eccentricities. He would flee noisy school assemblies. He couldn’t bear the smell of the cafeteria. By the end of first grade, his mother was spending much of the day at Alex’s side.
Robyne Barth soon learned her son had Asperger syndrome, a developmental disorder on the autism spectrum. Children with the disorder, known in shorthand as Asperger’s, might have strong academic gifts but deficiencies in such social skills as carrying on a conversation and playing with others at recess.




Asperger’s: My life as an Earthbound alien



CNN:

Recently, at 48 years of age, I was diagnosed with Asperger’s syndrome. For most of my life, I knew that I was “other,” not quite like everyone else. I searched for years for answers and found none, until an assignment at work required me to research autism. During that research, I found in the lives of other people with Asperger’s threads of similarity that led to the diagnosis. Although having the diagnosis has been cathartic, it does not change the “otherness.” It only confirms it.
When I talk to people about this aspect of myself, they always want to know what it means to be an “Aspie,” as opposed to a “Neurotypical” (NT). Oh, dear, where to start . …
The one thing people seem to know about Asperger’s, if they know anything at all, is the geek factor. Bill Gates is rumored to be an Aspie. We tend to have specialized interests, and we will talk about them, ad infinitum, whether you are interested or not. Recognizing my tendency to soliloquize, I often choose silence, although perhaps not often enough. Due to our extensive vocabularies and uninflected manner of speaking, we are called “little professors,” or arrogant.




School For Autistic Children Raising $250,000 For Operational Costs



channel3000:

WISC-TV first told the story of Common Threads back in October when the school opened.
Common Threads is a place where children can learn to overcome some of the communications challenges of autism.
It also provides support and services for families who aren’t able to get it anywhere else.
“I don’t know what else we’d do,” said mother Krysia Braun. “Honestly I’d probably have to go to preschool with him in order to make sure that he was getting the most out of it. If you’re going to spend money to go to private school, the kids need the support, and we find it at Common Threads”
On Sunday, the school held a fundraiser hoping to raise the $250,000 needed for the school’s operational costs.
“It’s necessary to help with our operating expenses during the first year of startup,” said Common Threads executive director Jackie Moen. “We are assimilating the children in slowly so they are fully supported and then they feel comfortable and understood and then we’ll bring in perhaps one to two children a week.”




The Genetics of Language:
Researchers are beginning to crack the code that gives humans our way with words.



Jon Cohen:

Daniel Geschwind reaches up to his office bookshelf, takes down a three-dimensional puzzle of the human brain, and begins trying to snap the plastic pieces together. A neurogeneticist at the University of California, Los Angeles, Geschwind hopes the puzzle will help him describe the parts of the brain that control speech and language. But for the life of him, he can’t figure out how the left and right hemispheres attach. “I’m really bad spatially, so don’t make fun of me,” he pleads. “It’s like I’m having a little stroke or something. I’ll get it together, and then I’ll figure it out.”
The plastic model may have momentarily flummoxed Geschwind, but when it comes to the genes that govern the brain’s development and functions, he excels at putting the pieces together. Over the past few years, he has emerged as one of the leading geneticists in a nascent field that aims to spell out which genes are related to speech and language development–and how our intelligence and communication skills evolved beyond those of our ape relatives, giving us the unique ability to speak.
Research like Geschwind’s sits at the intersection of two fields: behavioral genetics and evolutionary bi­ology. Each field depends on the other to make sense of the flood of studies on the genetics of language now pouring out of labs around the world. To peer into the human brain and see how it typically stores, uses, and comprehends words, Geschwind investigates not only normal human brains but also those where the process goes awry, studying the genes of families afflicted by autism, dyslexia, schizophrenia, and other conditions that can involve speech and language disorders. This research may help make diagnosis and treatment of language-related disorders more precise, but it also has a more basic purpose. “Studying disease is really a fundamental way to understand normal function,” says Geschwind. “Disease has given us extraordinary insight to understand how the brain works or might not work.”




A school where autistic kids aren’t alone



James Walsh:

A charter school that will serve students with autism-spectrum disorders in grades 6 to 10 is being hailed as a haven for teens with special needs — and their families.
You can see the ache in Tamara Phillips’ eyes.
As her autistic daughter, now 14, has grown, so too has the loneliness: her daughter’s loneliness in school, but also the parents’ loneliness — because having an autistic child can seem a solitary climb up a very long hill. “There’s a lot of pain,” Phillips said.
Tired of it feeling alone and weary of years of pushing public schools to better educate their kids, a group of parents of autistic children is starting a charter school specifically for older students with the disorder. When Lionsgate Academy opens, scheduled for the fall of 2008, it will be the only public school in Minnesota — and one of only a handful in the country — designed for children with autism-spectrum disorders.




The Next Attention Deficit Disorder?



Claudia Wallis:

With a teacher for a mom and a physician’s assistant for a dad, Matthew North had two experts on the case from birth, but his problems baffled them both. “Everything was hard for Matthew,” says Theresa North, of Highland Ranch, Colo. He didn’t speak until he was 3. In school, he’d hide under a desk to escape noise and activity. He couldn’t coordinate his limbs well enough to catch a big beach ball.
Matthew, now 10, was evaluated for autism and attention deficit hyper-activity disorder, but the labels didn’t fit. “We filled out those ADHD questionnaires a million times, and he always came out negative,” Theresa recalls. “When we found this place, I cried. It was the first time someone said they could help.”
This place is the Sensory Therapies and Research [STAR] Center, just south of Denver, which treats about 50 children a week for a curious mix of problems. Some can’t seem to get their motors in gear: they have low muscle tone and a tendency to respond only minimally to conversation and invitations to play. Others are revved too high: they annoy other children by crashing into them or hugging too hard. Many can’t handle common noises or the feel of clothing on their skin. A number just seem clumsy. Adults can remember kids like these from their own childhood. They were the ones called losers, loners, klutzes and troublemakers. At STAR Center they wear a more benign label: children with sensory processing disorder (SPD).




Study maps brain abnormalities in autistic children



Susan Kelly:

Autistic children have more gray matter in areas of the brain that control social processing and sight-based learning than children without the developmental disability, a small study said on Wednesday.
Researchers combined two sophisticated imaging techniques to track the motion of water molecules in the brain and pinpoint small changes in gray matter volume in 13 boys with high-functioning autism or Asperger syndrome and 12 healthy adolescents. Their average age was 11.
The autistic children were found to have enlarged gray matter in the parietal lobes of the brain linked to the mirror neuron system of cells associated with empathy, emotional experience and learning through sight.
Those children also showed a decrease in gray matter volume in the right amygdala region of the brain that correlated with degrees of impairment in social interaction, the study found.




Group files lawsuit for disabled students



Maureen O’Hagan:

Jacob, a former Issaquah student with severe disabilities, used to love it when other students visited his special-education classroom.
His mother said it helped him learn how to talk to other kids.
So when Jacob, who has been diagnosed with autism and mental retardation, went to live at the state-run Frances Haddon Morgan Center in Bremerton, his mother expected similar success. For years, school-aged Morgan Center residents had attended Bremerton public schools.
But this year the district decided it no longer has the classroom space to accommodate them. Recently, the district reached an agreement with the state Department of Social and Health Services, which runs the Morgan Center, to open a classroom on the institution grounds.
On Wednesday, Disability Rights Washington filed a lawsuit saying that taking these youths out of public school violates state and federal laws against discrimination.
The lawsuit, filed on behalf of eight youths ranging in age from 14 to 20, names the school district, the state Office of Superintendent of Public Instruction and DSHS as defendants, saying each played a role in the decision.




Parents of Disabled Students Push for Separate Classes



Robert Tomsho:

Last fall, groups who favor placing disabled students in regular classrooms faced opposition from an unlikely quarter: parents like Norette Travis, whose daughter Valerie has autism.
Valerie had already tried the mainstreaming approach that the disability-advocacy groups were supporting. After attending a preschool program for special-needs students, she was assigned to a regular kindergarten class. But there, her mother says, she disrupted class, ran through the hallways and lashed out at others — at one point giving a teacher a black eye.
“She did not learn anything that year,” Ms. Travis recalls. “She regressed.”
As policy makers push to include more special-education students into general classrooms, factions are increasingly divided. Advocates for the disabled say special-education students benefit both academically and socially by being taught alongside typical students. Legislators often side with them, arguing that mainstreaming is productive for students and cost-effective for taxpayers.
Some teachers and administrators have been less supportive of the practice, saying that they lack the training and resources to handle significantly disabled children. And more parents are joining the dissenters. People like Ms. Travis believe that mainstreaming can actually hinder the students it is intended to help. Waging a battle to preserve older policies, these parents are demanding segregated teaching environments — including separate schools.

More on from the Wall Street Journal on Mainstreaming.
Joanne has more.




Site Posts Videos of Autistic Behaviors



AP:

What’s so unusual about a baby fascinated with spinning a cup, or a toddler flapping his hands, or a preschooler walking on her toes?
Parents and even doctors sometimes miss these red flags for autism, but a new online video “glossary” makes them startlingly clear.
A new Web site offers dozens of video clips of autistic kids contrasted with unaffected children’s behavior. Some of the side-by-side differences can make you gasp. Others are more subtle.
The free site, which makes its debut Monday, also defines and depicts “stimming,” “echolalia” and other confusing-sounding terms that describe autistic behavior. Stimming refers to repetitive, self-stimulating or soothing behavior including hand-flapping and rocking that autistic children sometimes do in reaction to light, sounds or excitement. Echolalia is echoing or repeating someone else’s words or phrases, sometimes out of context.

autismspeaks.org




Family Wins Suit for Autistic Son’s Health Care



NPR (Larry Abramson):

Two years ago, Jacob Micheletti was diagnosed with autism.
His parents say Applied Behavior Analysis (ABA) has transformed their son from a boy who was retreating into darkness into a precocious, gregarious kid.
Jake’s father, Joe Micheletti, who works for the state of New Jersey, assumed the family’s insurance company would cover the treatment costs. They were not, which came as a shock, Micheletti said. So he took the case to the state’s highest court — facing off with fellow co-workers along the way — and won.




What Autistic Girls Are Made Of



Emily Bazelon:

Caitlyn & Marguerite sat knee to knee in a sunny room at the Hawks Camp in Park City, Utah. On one wall was a white board with these questions: What’s your favorite vacation and why? What’s your favorite thing about yourself? If you could have any superpower, what would it be?
Caitlyn, who is 13, and Marguerite, who is 16 (I’ve used only their first names to protect their privacy), held yellow sheets of paper on which they had written their answers. It was the third day of the weeklong camp, late for icebreakers. But the Hawks are kids with autistic disorders accompanied by a normal or high I.Q. And so the main goal of the camp, run on a 26-acre ranch by a Utah nonprofit organization called the National Ability Center, is to nudge them toward the sort of back and forth — “What’s your favorite video game?” — that comes easily to most kids.
Along with Caitlyn and Marguerite, there were nine boys in the camp between the ages of 10 and 18. They also sat across from one another in pairs, with the exception of one 18-year-old who was arguing with a counselor. “All I require is a purple marker,” the boy said over and over again, refusing to write with the black marker he had been given. A few feet away, an 11-year-old was yipping and grunting while his partner read his answers in a monotone, eyes trained on his yellow paper. Another counselor hurried over to them.




Schools Beat Back Demands for Special Ed Services



Daniel Golden:

Paul McGlone, an iron worker, and his wife, Tricia, became worried in 2006 that their autistic son knew fewer letters in kindergarten than he had in preschool.
When the East Islip school district refused their request for at-home tutoring by an autism specialist, they exercised their right under federal special-education law to an administrative hearing. There, a hearing officer ordered East Islip to pay for seven hours a week of home therapy. The McGlones hired a tutor, and their son “started to click again,” his mother says.
Then the district appealed the decision to Paul F. Kelly, the New York state review officer for special-education cases. He denied any reimbursement for home services. “The child’s progress was consistent with his abilities,” Mr. Kelly found in February. The family canceled the tutoring.
The McGlone case is part of a pattern that has many parents and advocates for the disabled in an uproar. They say administrative reviews in many parts of the U.S. overwhelmingly back school districts in disputes over paying for special-education services. State education departments, which have an interest in keeping down special-education costs, typically train or hire the hearing officers. Also, recent U.S. Supreme Court decisions and changes to federal law have made it harder for parents to win cases.




Using a Robot to Teach Human Social Skills



Emmet Cole:

Children with autism are often described as robotic: They are emotionless. They engage in obsessive, repetitive behavior and have trouble communicating and socializing.
Now, a humanoid robot designed to teach autistic children social skills has begun testing in British schools.
Known as KASPAR (Kinesics and Synchronisation in Personal Assistant Robotics), the $4.33 million bot smiles, simulates surprise and sadness, gesticulates and, the researchers hope, will encourage social interaction amongst autistic children.
Developed as part of the pan-European IROMEC (Interactive Robotic Social Mediators as Companions ) project, KASPAR has two “eyes” fitted with video cameras and a mouth that can open and smile.
Children with autism have difficulty understanding and interpreting people’s facial expressions and body language, says Dr. Ben Robins, a senior research fellow at the University of Hertfordshire’s Adaptive Systems Research Group, who leads the multi-national team behind KASPAR.




When Discipline Starts a Fight: Pressured to Handle Disabled Children, A School Tries Restraints




Robert Tomsho:

When Eva Loeffler walked into her daughter Isabel’s classroom at Waukee Elementary School on Dec. 15, 2004, she says a male guidance counselor was trying to contain the shrieking 8-year-old by wrapping his arms around hers in a restraint hold.
Isabel, suffering from autism and other disabilities, had a history of aggressive behavior, but Mrs. Loeffler had never seen her so agitated. Her eyes were glazed and her face was red. “She was like a wild animal,” says Mrs. Loeffler, who, at the time, felt sorry for the counselor who had to deal with her daughter in such a state.
That sympathy waned as Mrs. Loeffler and her husband learned all the measures the school district used on Isabel. These included restraint holds by three adults at once and hours in a seclusion room that teachers called “Isabel’s office.” There the girl sometimes wet herself and pulled out her hair, according to documents filed in a 2006 administrative-law case the Loefflers brought against the school district.
In March, the presiding administrative-law judge ruled that the district had violated federal law by educating Isabel in overly restrictive settings and failing to adequately monitor its methods. The district has appealed. Its lawyer, Ronald Peeler, says it used “established educational principles” in addressing Isabel’s problems, and made adjustments when its discipline wasn’t working. “We are not dealing with an exact science here,” says Mr. Peeler.




Key Special Education Legislation & School Climate




Click for a larger version

The recent Wall Street Journal article “Mainstreaming Trend Tests Classroom Goals” by John Hechinger included some useful charts along with a look at Key US Special Education Legislation:

  • 1966—Elementary and Secondary Education Act (Amendments): Creates Bureau of Education of the Handicapped. Establishes federal grants to help educate special-needs students with disabilities in local schools rather than state institutions. At left, President Lyndon Johnson with the first lady at the signing.
  • 1975—Education for All Handicapped Children Act: Requires school districts receiving federal funds to provide a free and appropriate public education in the least restrictive environment to special-needs children.
    Mandates creation of an individualized education program (IEP) for such students. Establishes procedures for parents to challenge related decisions about their children.
  • 1990—Individuals with Disabilities Education Act: Revised and renamed version of 1975 law adds autism and traumatic brain injury to categories of special education. Calls for transition services to help older students prepare for post-secondary education, employment and independent living.

  • 1997—IDEA reauthorization: Expands school administrators authority to discipline special education students in certain situations to include removal to alternative education settings for up to 45 days. Prohibits cutting off educational services to special-education students who are expelled.
  • 2002—No Child Left Behind Act: Requires all students to take annual assessment tests although states can make reasonable accommodations for those with disabilities. Special-education teachers must be “highly qualified” in core subjects they teach. At left, President Bush talking up the law at an Arkansas school.
  • 2002—No Child Left Behind Act: Requires all students to take annual assessment tests although states can make reasonable accommodations for those with disabilities. Special-education teachers must be “highly qualified” in core subjects they teach. At left, President Bush talking up the law at an Arkansas school.
  • 2004—IDEA reauthorization: Requires all special education teachers to hold at least a bachelors degree and full state certification. Places a two-year statute of limitations on parents ability file a complaint or request a hearing regarding childs treatment.
    Requires review of relevant records by parents and school officials within 10 days of a childs change of placement for disciplinary reasons.






Students’ rights versus limited means: Special Needs Children and School Budgets



Susan Brink:

The public school enrollment of autistic children, whether born into privileged or impoverished circumstances, has gone from a trickle to a flood. Their legal rights are crashing up against strapped school budgets.
Under two federal laws — the Individuals With Disabilities Education Act and the Rehabilitation Act, both passed in the 1970s and revised over the years — all special-needs children, including those with autism, are entitled to free and appropriate public school educations in the least restrictive environment. And, science shows, the sooner children with autism get treatment, the better their odds of speaking, reading, learning and eventually living independently.
A breakthrough discovery, released Feb. 18 in the online publication of the journal Nature Genetics, could mean that someday medical science might pinpoint the disorder in infancy, or even before birth. Researchers homed in on the genes behind autism, putting an early DNA test within reach.




Strangling Wisconsin Education With Underfunded Special Ed



Paul Soglin:

I met with some special education teachers on Tuesday and wish to share my observations about the Madison Metropolitan School District (MMSD). These are my observations and conclusions, not theirs.

  • For the 1996-97 school year the State of Wisconsin paid 40.223% of the cost of special education. For 2006-2007 the state paid  28%. (Here is a MMSD memo on the subject from 2005)
  • The MMSD cannot lower the expenditures for special education and so the lost state revenues must be made up by cuts in general education.
  • The lost funding amounts to about $8 million dollars this year.
  • In the 2001-2002 school year the MMSD enrolled 197 children with a Primary Disability of Autism. That number rose to 303 for this school year. Twenty five years ago that number was less than five. If one out of every 166 children are autistic, there should be 150 autistic children in the MMSD.
  • A 2003 district study showed that 93 of the autistic children enrolled that year moved into the district from not just Wisconsin and the United States, but all over the world. That number does not include the children of families who moved to Madison prior to their child’s fifth birthday.

My conclusions: Special eduction is just one of several factors driving the cost of educating our children. More significant is the cost of educating so many children enrolled in the MMSD who’s families are below the poverty line.

There is no question that the original outstanding commitment to special education of the MMSD in the 1980’s combined with the high level of services (Waisman Center, etc) attracted a significant number of families to the MMSD.

More on state K-12 finance from Paul here:

he Madison Metropolitan School District (MMSD) struggles to make budget cuts. Some taxpayers are assuming that if they, as students, could get a quality education twenty or forty years ago, then, with a little fine tuning, it can be today’s students.
The world and Wisconsin education has changed. Here are some of the differences from thirty years ago:




Virtual Schools Are Right for Some Families



Nichole Schweitzer:

As principal of Wisconsin Connections Academy (WCA), the state’s first virtual K-8 school, I see on a daily basis the benefits a standards-based virtual education provides for students from around the state.
Every student has unique learning needs. Some students learn best by reading, others by listening and still others by doing. In the same manner, a traditional school is best for some students and a virtual school is best for others. Wisconsin has been an educational leader for many years, and virtual schools are just one of the ways in which Wisconsin is staying at the forefront of education.
Virtual school teachers work with each student to modify lessons, and generally meet the student’s unique needs and learning style. This personalized approach to education is a good option for students who may be far ahead of or behind their peers, for students who need a more flexible schedule, or for students who learn best outside the walls of a traditional school, such as Jacob Martin.
Jacob is an 8th grade student at WCA. Because of his autism, Jacob benefits from learning in a more personalized setting: his home. Jacob recently wrote an essay about why he likes attending a virtual school, and he explained in his own words why a virtual school works best for him.




World’s Oldest Organization on Intellectual Disability Has a Progressive New Name



AAMR’s name change draws applause from professional community and people living with a developmental disability
Washington, DC (November 2, 2006)-The American Association on Mental Retardation (AAMR), a 130-year old association representing developmental disability professionals worldwide, has changed its name to the American Association on Intellectual and Developmental Disabilities (AAIDD), establishing a new standard in disability terminology and making way for a more socially-acceptable way of addressing people with intellectual disabilities. The AAIDD is arguably best-known for officially defining the condition of mental retardation for the world, and its successful advocacy in abolishing the death penalty for victims with this condition in the United States. The name change will take effect January 1, 2007.
“This new name is an idea whose time has come,” says Doreen Croser, Executive Director of AAIDD. “Individuals with disabilities and family members do not like the term ‘mental retardation’ and their advocacy is encouraging political and social change at national, state, and local levels. Our members demanded that we keep up with times and they voted for this name change.” AAIDD members consist of faculty members, researchers, and service professionals working with people with intellectual disabilities in settings such as group homes, institutions, schools, hospitals, private clinics, colleges, and university centers.
The name of the AAIDD has been an ongoing source of contention in the disability community. While it is widely perceived that mental retardation (MR) is a condition that exists, it was also recognized that the term is prone to abuse, misinterpretation, and has devolved into an insult, especially for people with disabilities and family members. Further, the name AAMR was perceived as not in keeping with the progressive orientation of the information, products, and services offered by the Association.
The applause from the community of people with disability was unanimous once the name change was announced. “In taking ‘MR’ out of your name, you’ve set a precedent for it to be taken out of the classrooms, the doctors’ offices, personal case records, and eventually out of the vocabulary of people walking down the street,” says Amy Walker of Illinois Voices, a group working on behalf of people with intellectual disabilities.
Hank Bersani, current President of AAIDD explains, “Intellectual disability is a more accurate and modern term, and is also in keeping with terminology in Europe and Canada. We want to move away from any use of the word ‘retardation,’ while still allowing educators and other professionals to accurately describe the needs of the people they serve. Further, with the new name, we are reminding our members and the public that our mission has long included people with various developmental disabilities.” Most members of AAIDD work closely with people with developmental disabilities since conditions such as autism and Down syndrome often co-exist with an intellectual disability.
Despite the new name, the core mission of the Association still remains the same-to promote progressive policies, sound research, effective practices, and universal rights for people with intellectual and developmental disabilities. The AAIDD has changed its name four times since its inception is 1876. The Association last changed its name in 1987 to the American Association on Mental Retardation.
Apart from its definition and advocacy work, the AAIDD is well-known for its journals, the American Journal on Mental Retardation and Mental Retardation. In recent times, the Association has received critical acclaim for the Supports Intensity Scale, a planning tool that empowers people with intellectual disabilities to live a desired life by getting services based on individual needs, not deficits.
Learn more about AAIDD at www.aamr.org.
CONTACT: Anna Prabhala
Ph: (202) 387-1968, ext. 212
Email: annap@aamr.org




‘Special education’ label covers wide variety of students



Karen Rivedal:


Madison educators said people must be careful not to label all special education students as violent just because the suspect in Friday’s shooting of a rural Wisconsin principal was in special education classes
Special education is broadly defined, they noted. It can be any kind of mental or physical disability that affects a student’s learning, from mild to severe, including speech and language problems, autism and emotional disturbances.
“Just because a child is a behavioral problem doesn’t mean that child is going to commit this kind of incident at all,” said Art Rainwater, superintendent of the Madison School District.
“There are thousands of children throughout the U.S. who have behavioral problems who don’t resort to violence.”




Mother Hopes to Educate School Board on Special Needs Students



Channel3000:

When it comes to educating children, parents play a crucial role outside of school. But Rose Helms, whose child, Michael, has autism, wants to take her influence inside the classroom.
This is why there was a special guest in Michael Helms’ special education class on Wednesday. The guest was Art Phillips, an Evansville school board member and a police officer.
“My interest is to learn about what the needs are, and if our district and our employees are meeting those needs to help the children out,” said Phillips. “That’s the biggest thing that I want to find out.”




Neenah schools add staff to special ed, gifted-talented program



The following story from the April 13, Appleton Post-Crescent reports on a school district in Wisconsin that is actually adding staff to both gifted and special education.
News-Record staff writer
NEENAH � The equivalent of four teachers will be added to the Neenah Joint School District next year to enhance its special education, and gifted and talented programs.
Last week, the Board of Education set the staffing level at 480.5 teaching positions for 2005-06, compared with 476.5 this year.
The changes will cost taxpayers an additional $244,000 next year.

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